November 13, 2013:
Recently i have seen discussion on GBM. I hope our experience with BP for my Son’s Medulloblastoma recurrence case will help.
My son was on FOCC effective 25 Aug 13 following the evidence of recurrence in July . Though we could not manage the suggested twice daily dose, one dose daily has been followed religiously . He has been on an integrated treatment consisting of TEMIRI + Avastin combination chemo ( just completed two cycles) , homeo (Ruta 6+ Lycopodium+ Calcarea Phos), Ayurvedic medicines, Borsweilla serrata extract, Chaparaal leaf extract and other Herbal supplements such as Spiriluna, Bee Pollen, black seed oil etc.., The daily diet was generally within the BP [Budwig Plan] compliance, however due to the age factor , we had to compromise, occasionally letting him go off the regime.
With the grace of Almighty, his MRI last week shows significant reduction. the bigger one reduced by 50%, while the other two small tissue enhancements have been disappeared. The larger area of oedema around the mass also significantly regressed. More importantly, symptom wise, he looks, feels healthy and attending school part-time without much difficulties.
He was on steroid starting from Aug for 45 days, we stopped it by mid Sept. This week his consultant advised to stop anti-seizure medication as well. The only thing that continue to be without any improvement is his left-side balancing and coordination problem – cant’ walk long distance or take steps without support etc…- which was started at the time of dx during Aug 2012., and we were not focusing on the physiotherapy/ occupational therapy following the heartbreaking recurrence evidence.
We are not sure which one worked for my son, but believe that BP compliance helped him to a great extent to achieve today’s status. We hope and pray the ultimate healer will continue to help him to come out of this trying times.
At this point , we were thinking to stop the chemo based on some reading. it says Temezol enhances the necrotic damage in the brain which also contributes to the increased level of glutamate in the brain helping tumor progression. Th report also says Avastin enhances the invasive property of some type of brain tumors. Then consultant says the avastin problem is not applicable to MB., and as per another radiation oncologist, as long as there are no pressure effects from the cystic/necrotic changes, the increased level of necrotic changes are favorable effects of treatment and the glial system (microglia) serves as scavengers that will slowly eliminate dead cells.
It is a tough choice to make , we therefore decided to continue with the integrated approach, and he is undergoing third cycle currently.
Hope this will help to those who still doubt the efficacy of BP.